About us

Letter from the President

John van Swieten, PhD
President, ISFTD

“Thank you for your interest in the International Society for Frontotemporal Dementias (ISFTD).

The International Society for Frontotemporal Dementias is a non-profit scientific society focused on frontotemporal dementias. Members include leaders in all areas of FTD research around the world, and the society is associated with a large, international biannual meeting presenting the latest findings. Our next conference is the 13th International Conference on Frontotemporal Dementias and 2nd International Society for Frontotemporal Dementia Congress 2022, which will be held in Lille, France , November 2-5, 2022.

We welcome new members and offer several levels of membership associated with where you are in your career. Membership includes updates on the latest discoveries in the FTD field through our newsletter, discounted registration at the biannual meeting and electronic access to the first volume of our new book series focused on FTD, which will be published by Springer in October 2020.

It is a time of unprecedented abilities to advance the science in the field of neurodegenerative disease, and frontotemporal dementia in particular. Exciting novel discoveries are made at a fast pace and potential treatments are being developed and tested. We welcome your participation in ISFTD to keep advancing this vibrant field. We look forward to serving you as a new member and helping to push forward the science in this important area.”

John van Swieten, PhD
President, International Society for Frontotemporal Dementias

Our History

The first International Conference on Frontotemporal Dementias (ICFTD) was held in Lund, Sweden in 1986 to draw attention to FTD as a newly recognized form of non-Alzheimer’s dementia. Three subsequent meetings were hosted by the Lund group at irregular intervals. In 2006, the conference took on its current form; a three-day scientific meeting combined with a one-day caregiver session, held every two years, with the site alternating between Europe and North America. Until recently, the choice location and timing of the meeting was informal, relying on a prominent individual or group within the field to volunteer to host, organize and take on the financial responsibility.

In 2011, the International Society for Frontotemporal Dementias (ISFTD) was founded as the major society of FTD scientists, with one of its central mandates being to ensure the future of the conference. Although it is anticipated that the ISFTD may eventually take on a central role in actually running and funding the meeting, at the present time, the society only directs the selection process and offers the support and advice of its membership. The ICFTD attracts a diverse audience that includes clinicians, neurologists, neuropsychologists, psychiatrists, neuroradiologists, neuroscientists, molecular geneticists, neuropathologists, neurobiologists, pharmacologists, and their trainees, as well as representatives from biomedical and pharmaceutical industries, government agencies, patient advocacy groups, patients, their families, caregivers, and interested laypersons.

The ICFTD is now well recognized as the primary venue for the synthesis, exchange, and dissemination of research evidence related to FTD, where experts from diverse backgrounds share recent discoveries, insights, and opinions. This allows novel hypotheses to be generated, research collaborations to be established, consensuses to be developed, training opportunities to be explored, and knowledge to be translated across disciplines. The caregiver session provides a unique opportunity for new scientific knowledge to be shared directly with stakeholders (patients, families, caregivers, community organizations, and health care policy makers) and, of equal importance, allows these stakeholders a rare opportunity to provide direct feedback to the medical and scientific community. By holding the caregiver session concurrently at the same venue as the scientific conference, the public is able to interact directly with the experts and become engaged in the process of knowledge translation.


Award Winner Research Center